So many of my readers have thanked me for explaining things they didn’t know about before that I decided to do something a little bit different with this blog post and invite questions from all of you. I write on three different topics: ME/CFS, mental illness/mental health, and LGBTQIA+ issues. I write about all of … Continue reading Any Questions?
It’s not typical for someone to keep getting worse when they have reduced their activity as much as you have. This was the news the OT from the fatigue clinic gave me when I saw him seven weeks ago. It threw me into a spiral of fear and depression which I have yet to emerge … Continue reading The Frightening Decline
Self-care! Which of us hasn’t been infuriated on stumbling across yet another article advocating bubble baths and walks in nature? Self-care is a big old trend at the moment and that is an excellent thing. It isn’t enough, of course. We also need a societal structure that supports people to care for themselves properly. The … Continue reading Self-Care Is What We Need It To Be
People tell me I’m strong all the time and it always bothered me in that small squirmy way where you aren't quite sure why you dislike the thing, just that you do. Here, I’ve finally thought my way through the problem and discovered that there are a few reasons I am uncomfortable with being called … Continue reading When You Call Me Strong, Who Do You Think Is Weak?
Severe ME Day was begun as a way and a time to remember those who have died from ME/CFS. It is held on the 8th of August because that was Sophia Mirza’s birthday: she was one of the first people in the world to have Chronic Fatigue Syndrome listed as the cause of death on … Continue reading Severe ME Day 2018
Life has been hard recently. It’s hard to say how long for, really. At the outside, I could say life has been hard since I was about ten and discovered the fickleness of friendship for the first time. It’s never been the same since. But, for the purposes of today, the last few months have … Continue reading Living With ME: Despair
I wish I hadn’t been raised as a christian. You can always decide to be one later in life if you want to, but you can’t take away being raised to think that gay people are evil and that hell is real and imminent the moment you put a toe out of line. This, of … Continue reading Queer Christianity and Me
Trigger warning: Self-harm I regard them with fear and loathing, and I avoid them whenever possible. It’s their own fault. If only they’d be nicer to me, I’d be nicer to them, but instead they keep intruding when they’re not wanted and are a constant, grating, irritant. I have a really bad relationship with my … Continue reading On The Nurturing Of My Senses
Before I get to the meat of this, let me celebrate this historic day by saying CONGRATULATIONS IRELAND! You beautiful, wonderful, brilliant people. Thank you for voting to allow women and other pregnant people to make their own choices about their own bodies. Thank you for voting for people not to be forced to travel … Continue reading Walking Away From My Wellness
Reading this back, I see that I mentioned going to the toilet a lot. The reason for this is that it was most of the activity I did on this day! Plus, one of my ME/CFS symptoms is a constant slightly-rough throat, which means I tend to drink a lot. 10.15 I wake up. It … Continue reading Living With ME/CFS: A Bad Day