Living with ME: Boredom

In which I am so bored I want to scream and break things. Content warning for suicidal thoughts. It was a bad morning anyway because I’d had my hair cut the day before, which involves energy draining activities such as going downstairs (and, worse, coming back up them again!) and talking to people (it’s tiring … Continue reading Living with ME: Boredom

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I’m Back – And I’m Tired!

In which I ramble about the last three months (nearly). It doesn’t seem like such a long time not to be posting, but it’s been strangely hard to get back into writing here. So in this post I’m not talking about any topic in particular, but just making a summary of what’s been going on … Continue reading I’m Back – And I’m Tired!

The Frightening Decline

It’s not typical for someone to keep getting worse when they have reduced their activity as much as you have. This was the news the OT from the fatigue clinic gave me when I saw him seven weeks ago. It threw me into a spiral of fear and depression which I have yet to emerge … Continue reading The Frightening Decline

Walking Away From My Wellness

Before I get to the meat of this, let me celebrate this historic day by saying CONGRATULATIONS IRELAND! You beautiful, wonderful, brilliant people. Thank you for voting to allow women and other pregnant people to make their own choices about their own bodies. Thank you for voting for people not to be forced to travel … Continue reading Walking Away From My Wellness