Living With ME: A Bad Day

Reading this back, I see that I mentioned going to the toilet a lot. The reason for this is that it was most of the activity I did on this day! Plus, one of my ME/CFS symptoms is a constant slightly-rough throat, which means I tend to drink a lot. 10.15  I wake up. It … Continue reading Living With ME: A Bad Day

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Living With ME: Priorities

A few years ago I met a young woman. She seemed very amiable and we met up a few times after I’d moved to a more northern city. I realised that she was in fact a prat when she made this remark about a person with ME/CFS: “She annoys me because she only makes the … Continue reading Living With ME: Priorities

The Prevention of ME/CFS?

ME/CFS can’t be prevented, we all know that. But do we? Certainly it isn’t something that medical professionals talk about, or ME/CFS advocacy and patient support groups, and equally certainly there is no proven method of prevention. I, personally, don’t believe that that means it isn’t possible. I think that we can protect ourselves, at … Continue reading The Prevention of ME/CFS?

Surviving Winter

Winter. It’s always been a question of survival. And in some ways, human beings are at a disadvantage: we can’t hibernate, we don’t grow thicker fur and most of us can’t afford to migrate. However, we make up for it with our big old brains. Winter is the reason we have fermented, canned, dried, smoked … Continue reading Surviving Winter

Therapy Reflection #1

This is the first in what I intend to be a series of posts where I reflect on my weekly therapy sessions. I’m writing this series for a couple of reasons. First, I hope that it will be interesting and helpful for me to reflect  on my therapy in writing a couple of days after … Continue reading Therapy Reflection #1